Keeping your OCD recovery on track
“I was doing really well, my hands weren’t even sore and then along came Corona! It’s got my OCD saying ‘I told you so’”.
FTB Service User
The above experience has been voiced by many of our young people struggling to manage their Obsessive-Compulsive Disorder (OCD) at this time. Their health fears alongside the fear of contamination have left many crippled with anxiety.
The World Health Organisation (WHO) ranks OCD in the top ten of the most disabling illnesses in terms of lost earnings and diminished quality of life. So, as if the constant OCD alert bulletin wasn’t already enough, we know that the daily and increasing focus on the pandemic in the news is beyond triggering.
However, it made a few of us here at FTB wonder. Could this still be an opportunity rather than a stumbling block? Is there still a chance to “boss back” OCD? Absolutely!
We don’t live in a perfect world and OCD is always going to tell you that you’d better keep up those extra rituals... just in case. So we’ve put together some advice to put OCD where it needs to be.
The following tips are useful whether you are at the beginning of your treatment journey or fearful of relapse during this triggering time and are designed to keep you, rather than OCD in charge of your life.
Choose your news
It’s tempting to constantly check news bulletins to see how the situation is developing. OCD might even tell you that you should be, “just in case”. But we know that constant checking only increases anxiety. However, we also acknowledge that it is difficult to ignore. It may therefore help to limit your news intake, turn off notifications and alerts or simply switch channels.
Top Tip: Remember - ‘panic sells papers’ so dismiss emotive headlines and stick with the science
Keep things ‘business as usual’
As far as possible, normalise your life. For travel advice take the government's advice and not your OCD's. Try to be guided by reason, responsibility and the rational. Make decisions will based on information released not on the extra “OCD alerts” and keep a note of the difference.
Top Tip: It might be helpful to observe a friend or family member without OCD and see how that person is making decisions and try to follow their lead.
Give yourself permission to follow health advice
If you are currently in treatment/recover , you may have already been making a sterling effort to reduce compulsive rituals to keep OCD in check. However, at this time we’d advise you to give yourself permission to follow World Health Organization (WHO) or U.K. Government guidelines. Remember, the WHO has the scientific knowledge to give good advice, that charlatan OCD does not.
Top Tip: Remember not to over-do it. You may find yourself questioning government advice as, for example, your own hand-washing routine may be longer than the advised 20 seconds. Make the recommended guidance your “cut off” and remember that official advice is enough.
Practice healthy strategies to regulate emotions and tolerate the uncertainty
The uncertainty of this time is still an opportunity to get OCD back in the box. Following recommendations is in itself an exposure and response prevention (ERP) exercise and repeated exposure helps you handle it.
The situation is undeniably scary and there is so much uncertainty. It might help to put together a coping plan (absent of increased rituals and compulsions) to help you manage the anxiety. But remember that the aim is to use your skills to tolerate uncertainty rather that work as hard as possible (ultimately failing) to create certainty.
Top Tip: Tolerate to regulate
Let family and friends know
Anxiety about COVID-19 is normal and you are certainly not alone. The situation has raised anxiety in even the most stalwart individual. If you are experiencing an increase in anxiety and distress and need extra support, there is no shame in asking for it.
Top Tip: Let others know you are struggling so they too can limit the discussion of news updates around you.
Cheerlead yourself
Remind yourself of your treatment goals and your motivation for recovery. Tell yourself you can do this because you can.
Top Tip: OCD may well be ‘dancing an anxious jig’ right now, but nothing has changed. It’s not the boss of you. You’ve got this!
Remember you are not alone
As well as sessions with your core worker there are a number of self-help guides and resources online. Remember our drop-in service, Pause, also has dedicated workers on hand to offer support and guidance.
OCD-UK has free discussion and support forums for people with OCD and family members. They are completely FREE to use and are fully moderated. Register at: https://www.ocdforums.org/
References and acknowledgements
OCD UK.
Reid Wilson, PhD, author of Stopping the Noise in Your Head: The New Way to Overcome Anxiety and Worry,
Kimberley Quinlan, LMFT, creator of ERP School,
Shala Nicely (2020)