Avoidant restrictive food intake disorder (ARFID)

Avoidant/restrictive food intake disorder (ARFID) is previously known as feeding disorder or selective eating disorder. Someone with ARFID avoids eating certain foods, limits how much they eat, or does both. 

When a person develops ARFID, they are less worried about their body weight or shape and develop the eating disorder for other reasons, which include:

  • a dislike of the smell, texture or taste of certain foods.
  • feeling anxious following a negative experience with food, for example choking or sickness. 
  • previous fussiness with eating which develops into a more severe dislike of certain foods.
  • a lack of interest in food and not feeling hungry.

Seek urgent help if you have rapidly lost weight for longer than a few weeks, lost weight over three months, or think your eating is out of control. Speak to your family doctor (GP) if any of these happening to you or a young person you care for.

What is ARFID?

ARFID is a mental health condition where the avoidance or restriction of food is not motivated by preoccupation with body weight or shape. ARFID is an eating disorder, where a child or young person has one or more of the following issues present: significant nutritional deficiency; dependence on enteral feeding or oral supplements; marked psychosocial issues; or weight loss/growth faltering, in the absence of body image issues, such as in anorexia. It is as a psychiatric diagnosis, where the primary drivers for a child or young persons feeding problems are psychological. 

ARFID Key considerations

There are three subtypes of ARFID: 1. restrictive; 2. avoidant; and 3. aversive.

Restrictive May show little to no signs of interest in food. It can mean one forgets to eat altogether, have a low appetite, or gets extremely distracted during mealtimes. It can also include extreme pickiness of food, resulting in limited intake.

Avoidant Individuals will avoid certain types of food in relation to specific sensory features, causing a sensitivity or overstimulation (which differs from wider sensory processing difficulties such as sensory dysregulation that might prevent the child from being able to sit and eat). These individuals are sensitive to the smell, texture, or appearance.

Aversive May experience psychological, fear-based reactions to food. Evokes a fear of choking, vomiting, nausea, pain and/ or swallowing, meaning the individual avoids the food altogether.

ARFID assessment and treatment criteria

Children and Young People with needs that may be best met by our service

ARFID is a behavioural diagnosis and does not address medical, developmental or skill-based issues ARFID and PFD - Feeding Matters .  The following list summarises who our treatment pathway is designed to support:

  • Age 6 and over (in line with current evidence base for treatment approaches for ARFID in our mental health pathway – Family Based Treatment-ARFID and -ARFID).
  • Lack of interest in eating (lack of recognition of hung Cognitive Behavioural Treatment er signals or finds eating a chore). Experience compromises the persons quality of life or ability to access things that they would like to.
  • Sensory Sensitivity (extreme limited range of food intake due to difficulties around texture/taste of foods), which can later lead to a lack of interest around eating. Sensory difficulties go beyond what may be seen typically in populations where preference for beige diet (as seen in Autism) and is seen as problematic for the young person as well as their family.
  • Fear of adverse consequences (this might include fear choking or vomiting)where significant changes have been made to food intake.

Avoidant or restrictive eating may be a recent change in behaviour or may be a longstanding difficulty, however the young person should have been successfully weaned onto a solid diet as part of a developmental milestone, even if diet range and intake is limited, as this may indicate Paediatric Feeding Disorder or a medical condition that would require a different treatment approach.

Children and Young People with needs that may be best met by other services (such as Paediatricians, Occupational Therapy, Speech and Language Therapy, Community Dietetics).   

  • Age 5 and under
  • Exclusively tube fed
  • Meets criteria for Paediatric Feeding Disorder or other developmental or medical feeding difficulty
  • Disturbance in oral intake of nutrients, is primarily associated with one or more of the following: medical, feeding skills, learning disability and/or functional or oral motor skills dysfunction.
  • The young person never successfully weaned (never established a diet with solid foods or a range of foods at the point of weaning). This would require a referral to a paediatric team or other local services that offer this skills-based support.
  • Food and eating limits, as a result, of swallowing difficulties, that are not being managed by other services (investigations not yet completed or not receiving support for dysphagia).
  • Children who have persistent physical symptoms (e.g. reflux, constipation, vomiting, chronic pain) which are not well managed and are likely to be an alternative explanation for restricted eating.
  • Children with developmental delay in which the food intake is in line with their developmental stage who require time and support from local professionals to acquire developmental skills pertinent to feeding.
  • Restriction or avoidance explained by another eating disorder such as Anorexia Nervosa, Bulimia Nervosa and Binge Eating Disorder.
  • There is no current treatment offer for individuals with symptoms of Pica or Rumination Disorder.

A decision will be made on the clinical suitability of offering ARFID consultation or signposting to partner agencies with the above co-occurring conditions or diagnoses. Requests for input will be considered within the context of whether the severity of the eating disturbance exceeds that routinely associated with the comorbid condition. 

Comorbid medical conditions must be investigated prior to referral, as a direct cause of the limited intake (e.g., vomiting, constipation, reflux, swallowing difficulties, pain).

 

ARFID Signs and symptoms

It is important to remember that someone may be avoiding and/or restricting their intake for a number of different reasons, which means that ARFID presentations can differ in one person to the next. Because of this, there is a wide range of possible signs and symptoms. Please ensure that an in-depth assessment is offered prior to diagnosing.

  • Difficulty recognising when hungry.
  • Always having the same meals.
  • Appearing to be a “picky eater”.
  • Only eating similar foods (e.g. only beige coloured foods).
  • Weight loss, or not gaining weight as expected in children.
  • Sensitivity to certain textures, smells, etc. Finding eating and mealtimes a ‘chore’.
  • Eating a reasonably varied diet, but still eating less food than is needed.
  • Missing meals due to being busy with other things.
  • Needing to take supplements to ensure nutritional needs are met.

ARFID pathway

Treatment Approaches offered include:

  • Cognitive Behavioural Treatment (CBT) for ARFID,
  • Family Based Treatment for ARFID,
  • Exposure and Response Prevention Therapy, 
  • CBT for anxiety/phobias,
  • Mental Health Occupational Therapy and Dietetics (nutrition/refeeding),

We also offer training and consultation for clinicians.

ARFID Referral guide

Is it ARFID?

Due to the cross-over in symptoms, the most obvious being limited oral intake, there is sometimes confusion between the (Paediatric Feeding Disorder) PFD and ARFID diagnoses. PFD is a developmental, multidisciplinary (MDT) diagnosis that includes challenges in any one or several of the four domains, medical, nutrition, feeding skill, or psychosocial. It can be diagnosed following an MDT assessment (for example SLT, OT and Dietitian), that has investigated medical history, nutritional, feeding skills and psychosocial domains.

When a child has significant feeding difficulties, the standard of care should involve a multidisciplinary assessment that considers the four domains of PFD to ensure that skill and/or medical factors are not contributing to the child’s feeding struggles, prior to considering an ARFID diagnosis. For PFD consider referrals to Community Paediatric Services rather than a mental health service. (See ARFID and PFD - Feeding Matters for further information ).